More Procedures

Scott has settled in to his new digs in Redwood City.  Doctors there are concerned about the increased build up of fluid and decided yesterday to install a shunt to relieve fluid buildup, swelling, and pressure.  Scott was scheduled to undergo the procedure last night.  Unfortunately, Scott's blood pressure dropped and, as a result, they were unable to complete the surgery.  They were able to install a small drain in the meantime.  Scott was stabilized and transferred from the critical care unit back to the ICU.  He remains in ICU today.

We are all concerned about the length of time that Scott has now gone with out a feeding tube in place.  Today = day 5.  (The tube which was inserted in his mouth and extended down to his stomach was removed on Sunday in anticipation of his transfer.  However, it took a few days for him to transfer and the tube was left out.  Since arriving at Kaiser Redwood City Jen has been asking and asking when the tube will be replaced.  She was told they wanted to evaluate his ability to swallow first, and wanted to explore other options, but thus far staff have not replaced the tube.)  He is scheduled for surgery this morning at 10 am to have a gastric tube placed directly in to his stomach.  Given the difficulty he had under anesthesia yesterday, it is not clear whether they will attempt this procedure today or not.

Making sure that Scott starts getting fed has become a source of great stress.  Jen believes, and I certainly agree, that Scott is having a difficult time tolerating these procedures right now because he is hungry and does not have his full strength.  She and my dad are at the hospital together today and she says she will refuse to leave tonight until medical staff find some way to administer nourishment to Scott.  I'm very hopeful it will get resolved today.